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(BBC 26/09/2009)

Doctors at first thought the tiny lump in Emma Evan's neck was merely swollen glands. However, not only had Emma got a potentially serious illness of the nervous system, but that at least four other members of her close family also had the same condition, neurofibromatosis. Neurofibromatosis 1 (NF1) occurs in one in 2,500 births and mainly affects the nervous system and the skin. The hallmark is the development of neurofibroma - benign tumours that form on nerve coverings on or under the skin.

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Father-of-two can't get a job - because employers think he's 'too ugly'

(Daily Mail 21/10/2008)

Edward was born with hereditary condition neurofibromatosis, which has left his face and body covered with the harmless tumours. Depressed Edward, who has 40 years experience in the food industry, said: 'I'm registered with all the local job agencies and one of them even mentioned my skin condition and said their clients wouldn't like it. 'I think employers feel uneasy about taking me on'.

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