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News items on 'Arthrogryposis Multiplex Congenita'
(BBC 04/04/2009)
Like any teenager, Roxanne Walker needs 'me' time away from her mother and father. 'Me' time though is difficult as Roxanne has a severe medical condition, which has left nearly every joint in her body fused. She cannot walk, talk or swallow. She cannot even sit up unaided. But she is fully aware of what is going on around her. She needs care 24/7, which means one of her parents is always on hand, but, as Roxanne's mother Gilly knows, no teenager wants their parents around all the time.
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