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News items on 'Alport's Syndrome'
(BBC 11/07/2009)
Aric Ebbs was becoming weaker and weaker, and even climbing the stairs was a struggle. He had to give up his work as a landscape gardener. Two of his brothers had already been diagnosed with kidney problems and had needed dialysis. Aric, 24, from London, feared the worst. He was reluctant to get himself screened as an earlier urine test had cleared him of kidney disease but his mother insisted (Alport Syndrome).
Willing to go under the knife for an uncle he has never met
(BBC 05/06/2009)
A Hawick youth worker is setting out for the US to donate one of his kidneys to an uncle he has never met. Chris Goodwin, 20, is flying to Alabama this weekend to give one of the organs to Eddie Goodwin who has the hereditary kidney disease, Alport Syndrome. The 44-year-old ex-Walmart worker was born with the condition but it was not diagnosed until seven years ago. His nephew from the Borders is due to fly out on Sunday for medical tests to check the operation can go ahead.
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