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News items on 'Haemophilia (all Types)'
Royal blood disorder identified
(BBC 08/10/2009)
DNA analysis has revealed the identity of the "cursed blood" disorder that afflicted the British Royal Family in the 19th and early 20th centuries. Scientists say the disease inherited by Queen Victoria's descendants was probably a severe form of the blood clotting disorder haemophilia B. The scientists examined DNA samples extracted from the skeletal remains of Russia's Romanov family. The research is published in the journal Science.
Tainted blood compensation upped
(BBC 20/05/2009)
More money is being made available in pay-outs for some of the victims of the contaminated blood scandal. Thousands of people in the UK using blood products, mainly those with haemophilia, were infected with HIV and hepatitis C during the 1970s and 1980s. Campaigners have said the level of pay-outs was too low and the means-testing system demeaning. But ministers stopped short of the full reform of the system which campaigners and an independent inquiry called for.
800 haemophiliacs given tainted blood at risk of vCJD
(The Independent 20/05/2009)
More than 800 people with haemophilia have received contaminated blood products putting them at heightened risk of developing vCJD, the Government has disclosed for the first time. The figures were revealed in a parliamentary answer from Lord Darzi, a Health minister, following the death of a haemophiliac who had received infected blood products. A post-mortem examination on the man revealed traces of variant Creutzfeldt-Jakob disease (vCJD) in his spleen.
802 haemophilia patients at risk from vCJD
(Telegraph 16/05/2009)
More than 800 haemophilia patients have received blood from donors who developed the human form of mad cow disease the Government has admitted.
Delays led to thousands receiving contaminated blood
(The Independent 23/02/2009)
An independent inquiry today condemned the "procrastination" that led to thousands of patients becoming infected with HIV and Hepatitis C from contaminated blood. The NHS bought blood from US suppliers who used what became known as "skid row" donors, such as prison inmates, who were more likely to have HIV and Hepatitis C.
Contaminated blood findings due
(BBC 23/02/2009)
A privately-funded independent public inquiry into how contaminated NHS blood products were supplied to patients with haemophilia is due to be published. During the 1970s and early 1980s, nearly 5,000 people were exposed to hepatits C and, of these, more than 1,200 were also infected with HIV. Almost 2,000 of those people have since died as a result.
(BBC 26/01/2009)
British haemophiliacs infected with viruses such as Hepatitis C and HIV from blood products used to treat them will soon hear the results of an inquiry set up to find out what went wrong. The Government has consistently refused to hold a public inquiry, so the haemophiliac community ran its own, chaired by Lord Archer of Sandwell.
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